I joined the charity Bladder Health UK a couple of weeks ago and I was so impressed that I decided to write a blog post about it. If you’re already a member, as I know several visitors here will be, please feel free to go and find something more fun to read – you don’t need me to tell you how great the organisation is! However, if you suffer from a bladder illness and are not a member, please read on to find out more about this fantastic charity.
Bladder Health UK was founded as the Interstitial Cystitis Support Group in 1994 by two sisters, who both suffered from the disease. Very little was publicly known about the condition back then, so the sisters started a national charity to provide information and help to fellow sufferers. Some years later the charity changed its name to the Cystitis and Overactive Bladder Foundation (aka the COB Foundation) to provide support for a wider range of bladder issues. Then, in 2017, it became Bladder Health UK. It now provides resources for sufferers and the medical profession, with the aim of helping people to live more positively with bladder illness through the provision of support and personalised care.
Happy Boxing Day!
I was hoping to upload a blog post last week, but it’s all about the charity Bladder Health UK and I’m waiting for them to approve it before I publish. In the meantime, as it is Boxing Day, I thought I’d do something a little different and share a couple of festive recipes with you.
I used to think I didn’t like sprouts, but a few years ago I realised I’d been cooking them all wrong, the way pretty much everyone in the UK does. A man from Poland, who works just down the road from where I live, gave me a recipe for garlic sprouts and I suddenly discovered what I’d been missing out on. I’ve modified the recipe as my dietary requirements have changed and I now present for you two versions: a healthy one, and an indulgent one. I make no claims that they are IC-friendly, but they are very delicious! In the summer months, you can substitute the sprouts for cabbage. The healthy version is one of my all-time favourite meals and I’m so grateful that I have grown to love this nutritious and under-loved vegetable.
Calling all interstitial cystitis and non-bacterial prostatitis sufferers! Do you experience any of the following?
Hives or non-contact dermatitis
Itchy, runny, or sore eyes
Runny nose or scratchy throat
If so, your painful bladder symptoms might have a histamine component to them. Histamine is an organic compound, produced in the mast cells. Mast cells are found in connective tissue including the skin, stomach and intestines; in mucosal tissue; and around blood vessels, nerves and lymphatic tissue. The purpose of histamine is to provoke an immune response such as inflammation, increased mucus production, capillary dilation, or smooth muscle contraction when the body is exposed to an allergen. It also acts as a neurotransmitter for the brain, spinal cord and uterus, assists with digestion, and helps regulate the sleep/wake cycle.
At the beginning of October, Tiny Pioneer took a trip to Cardiff to attend a conference of Pelvic, Obstetric and Gynaecological Physiotherapy. We were there to exhibit Desert Harvest’s products, in particular the Aloe Glide™, the Aloe Vera Gelé and the Reléveum®. Cardiff is a long way from Tiny HQ, so we travelled down the night before, set up our stand early in the morning, and spent the exhibition day meeting with dozens of physiotherapists who specialise in treating pelvic pain disorders. Some practitioners had already heard of Desert Harvest, which was great to hear, and one had just returned from visiting an Aloe Vera farm in Mallorca, which was especially exciting! We gave out goody bags, of course, and plenty of people requested sample sachets to give to their patients, so if you are visiting with a pelvic physio soon, do ask if they were at the event and came to see us!
In the lead up to the event, Desert Harvest gave us lots of new information about the Aloe Glide™, the Aloe Vera Gelé and Reléveum® to help us prepare for any technical questions the physiotherapists might ask. It was great to learn so many new things and we’ll be updating the product pages in the next few weeks to make them more comprehensive. However, one thing we really loved was this infographic that Desert Harvest sent to us, showing which products go with which vulvovaginal conditions. We wanted to share it with you, as we think it’s a great resource for helping to select the right product for your needs!
Regular readers might remember that last year there was great excitement at Tiny Pioneer when Desert Harvest announced that they were going to be making a calcium glycerophosphate supplement. For those of you who don’t know, there is a supplement called Prelief that lots of people with interstitial cystitis use. It removes up to 95% of the acid from food and drinks without affecting stomach acid levels, meaning that those who experience flare ups of bladder pain as a result of ingesting acidic foods can find some relief. Hence, one supposes, their choice of brand name! The fact it acts on the food and not the stomach means it does not compromise the digestive process and can be safely taken by people with low stomach acid.
In one of my earliest blog posts, Tiny Tips for Dealing with a PGAD Flare, I talked about various things that I found helpful in dealing with the symptoms of my own persistent genital arousal disorder. Although it took me a while to notice any patterns or triggers, I eventually realised that sitting at my desk for long periods of time made me much worse. I worked as an audio typist when I first got PGAD, so I spent hours a day sat at a desk with my foot on a pedal. I also liked to sit on my bed with my legs crossed to read or study, which meant I had to lean forwards to see my books. This created a lot of pelvic tension, which I now know certainly wasn’t helping matters. It was only when I got a few days where I wasn’t working much and had spent more time on my feet than usual that I realised sitting down was such an issue – up until then I’d discounted it as a factor, as I’d tried taking regular breaks when working to move around and do stretches and it hadn’t seemed to make any difference. I’d also tried to improve my posture when working and had experimented with different kinds of cushion to no avail.
This week is Herbal Medicine Week, so to mark the occasion I thought I’d write a post! As regular readers will know, my mum is a medical herbalist, so using herbs as medicines has been a natural part of my life. I tend to forget that not everyone knows what herbal medicine is and that not everyone can just pop in ‘the surgery’ when they’re feeling under the weather and whip up something appropriate for the ailment. I feel very fortunate to be able to do so and thought I’d take this opportunity to share a little about herbal medicine for those who may not know anything about it.
Simply put, herbal medicine is the use of plants to treat illnesses and restore health. When they first hear of it, most people are quite sceptical and ask, “Do you actually believe in it?” or, “Does it really work?” However, when you consider the things we do and do not eat because of the effects they will produce on our bodies, it stands to reason that plants would be capable of exerting both health promoting and health damaging effects. For example, most people are very happy to see their children eating fruits and vegetables, because it is widely accepted that these plant materials are nutritious and beneficial to eat. Most people would be deeply distressed to learn that their children had eaten holly berries or yew berries, as these plant products are highly poisonous. Nobody questions these facts or asks another person whether they believe them. They are just accepted truths. And so it is that most plants, if ingested, exert effects of some sort on the body and mind.
Sunburn season is already well under way in the UK and here at Tiny Towers we think every home should have a bottle of Desert Harvest Aloe Vera Gelé on hand for at the end of a sunny day! Tiny is a real English rose – or a pasty prickle, depending on your perspective – so some degree of sunburn on the shoulders is an annual occurrence for her even if she’s really careful. She tried some Gelé in place of after sun lotion a couple of years ago and she is totally converted – it’s amazing! In fact she’s discovered that it’s useful for so many other things besides intimate comfort that she thinks it should be a household staple for everyone! We therefore thought we’d write a light, summer blog about the many things we’ve tried it out for and a few things we haven’t! Please note that we’re not doctors and we’re not saying the Gelé cures any particular ailments – it’s just a fun list of things we’ve tried it out on and have personally liked.
A few nights ago I was cutting open an avocado to have with my tea. I am a northerner, so the meal I really mean here is dinner, should the timing of the event be important to you. Whenever I eat avocado, I always feel like a truly healthy person – it’s the kind of food I used to aspire to eat, as if it represented some milestone in having ‘made it’, nutritionally speaking. All the top nutritionists and health bloggers tell us how delicious avocados are. How good for our skin. What a good source of healthy fats, essential for brain and heart health. How we’ll have to be careful not to overindulge on them, because they’re surprisingly high in calories. Avocados are the food of the beautiful, the successful and the optimally healthy. There’s only really one problem. They’re not actually very nice.
Cutting open that avocado, I was reminded of the first time I ever tried one. A woman I worked with in my late teens, who to me seemed very healthy, used to enthuse about them on a regular basis. Keen to see what all the fuss was about – and definitely keen to get some goodness into my then fairly poor diet – I purchased one and called my mum into the kitchen to share the excitement of the grand opening. Firstly, we couldn’t figure out how to get in the thing – it seemed to have a big stone in the middle so you couldn’t just cut it in half. Unaware of the slice around and twist trick, we just sort of hacked and pulled at it until the poor thing was all squashed. Secondly, when we got inside, we didn’t actually know how best to eat it. The flesh didn’t look like any other fruit we’d eaten, so we were slightly put off by the texture and smell. We peered at it, somewhat underwhelmed, and then spooned a bit out and ate it. It was, we declared, disgusting. And that was that.
Did you know that there is a word to describe the phobia of having a bowel movement when other people are around, or are likely to be around? If you are a naturally confident, uninhibited person with normal, healthy bowels, you have probably never imagined that there could be such a fear! However, if you are a shy or socially anxious person – and especially if you suffer from a digestive disorder – it doubtless comes as no surprise to learn that inhibitions surrounding bowel movements can develop into real and serious issues.
Many people would admit that they feel awkward emptying their bowels in situations where other people might know about it. Ideally most of us try to cultivate a routine where we go to the toilet before or after work, so that we can have privacy and secrecy for the act. While it’s acknowledged that everyone empties their bowels at one time or another, it is considered a requirement of polite society that you do it in your own home whenever possible. I’ve found that in general men tend to be a bit more free and easy about it, but as a woman, there is often an unspoken rule that you must hold it in until you get home. It would be considered a faux pas indeed for a female to poo in cubicle toilets at work; in her friend’s bathroom; in any place where she was known (e.g. her local pub); or in ANY public bathroom if someone she knew was in one of the other stalls. Only a really confident, unapologetic, socially dominant sort of girl would generally feel comfortable doing anything like that. Mere mortals are expected to wait until we get home, or do it very secretly.
Announcements are like buses at Tiny Towers this week – there are none for ages and then two come along at once! This one will be brief, but we’re very excited – we have now opened up our website so that anyone in a European Union member country can order from it!!
We’ve had a few requests in the past to ship overseas, but people outside the UK and Ireland have previously had to email us their order and pay by bank transfer or PayPal. We’ve also had to mess about with exchange rates and weights to calculate shipping costs in advance, which hasn’t been ideal for either party. We’ve now made it so that the online shop is accessible in all EU countries, which is great for Desert Harvest’s European customers, as they should now be able to get hold of their favourite products more quickly and more cheaply than before.
Last October I told you that some new Desert Harvest products were to be launched. I’m excited to announce that all four of them are now in stock and ready for you to purchase!
We’ve had the calcium glycerophosphate for a few weeks now – this is the same form used in Prelief and can be taken to reduce the acidity of food and drinks, without impacting on stomach acid. I think this will be a really popular product, as no matter how careful we are with our diet and lifestyle, flare ups can occasionally happen. When they do, most people just want some symptomatic relief and calcium glycerophosphate should make eating and drinking during a flare up much easier. It can also be taken to raise calcium levels, if this is something you need.
In my last blog post, I wrote about our time in Glasgow helping Desert Harvest on their stand at the annual conference of the British Association of Urological Nurses. Over the two days, many delegates visited the booth to collect goody bags (a high priority at any conference!) and to ask questions about the products. I obviously already knew quite a bit about the sample items, how each is used, and some background information about Desert Harvest, because it’s my job to know about the products we stock at Tiny Pioneer and the suppliers we use! However, listening to Heather, Chief Operating Officer of Desert Harvest, interact with the nurses was a truly educational experience – not only does she know her business inside out, but she knows a LOT about aloe vera in general. I learnt loads of interesting things about the field-to-bottle journey taken by Desert Harvest’s aloe plants and I thought they’d make an excellent topic for a blog post. Read on to find out what makes Desert Harvest’s Super Strength Aloe Vera Capsules so special and why you can’t just drink juice to get the same effects!
Did you know it takes a whole aloe vera plant a whole year to grow enough leaves for a single pot of aloe capsules? And I’m not talking about a pot plant like you might have on your kitchen window for burns – each plant grows to between three and four feet high and three feet wide before being harvested.
The end of November was an exciting time for Tiny Pioneer, as we finally came face to face with Desert Harvest at the annual conference of the British Association of Urological Nurses in Glasgow! Desert Harvest had flown over to exhibit at the conference and Tiny Pioneer was invited along to help out on the stand. Of course we were delighted to go: it was a wonderful opportunity to promote our little business; a great chance to help Desert Harvest raise awareness of their products within the urology community; and both parties were finally able to put faces to names!
Team Tiny packed up our trunks on Saturday 25th and drove north, arriving in the city just in time to cook our tea (turkey stir fry, should you be interested). It was an early start on Sunday morning, as we headed over to the SECC to help set up the stand. The venue wasn’t quite ready for us when we arrived, so after we’d said our hellos and found our approximate stand position, we went our separate ways for the afternoon. We met again at 5pm and Tiny stuffed brown bags full of goodies for the nurses while the more experienced people erected the screens.
Take a mustard powder footbath.
This is another thing I swear by in the early stages of a cold – a bowl of really hot water with a tablespoon of mustard powder dissolved in. Soak the feet in it (or hands if you prefer) for about 15 minutes, ideally just before bed. It’s great for warming you up and helping you to sweat things out – I do this whenever I feel like I’m coming down with something. I sometimes do it just to warm my feet up as well, especially if I’ve been wearing high heels and am feeling ‘cold to the bone’. Mustard is a good detoxifier and in a footbath it draws blood to the surface (you can tell by how pink your feet go), relieving congestion from other areas. I sometimes add a cup of sea salt for added detoxifying effect. You can also apply mustard poultices externally to the chest area to assist with congestion or respiratory infections, although I have never tried this, so I can’t vouch personally for its efficacy.
If you visited the Tiny Pioneer website while it was down, you may remember that we promised you some exciting news once we were back up and running. We don’t have full details yet, so when you’ve read this you’ll know as much as we do, but drumroll, please…!
Desert Harvest is introducing a new low acidic, IC friendly, multi vitamin and mineral supplement!
We were SUPER excited when we heard this news – anyone with interstitial cystitis who has tried to find a multi will know that it is tricky getting one with everything in the form you want and in decent amounts. We don’t know exactly what will be inside the Desert Harvest version yet, but we can’t wait to find out and we think it will make life much easier for anyone with special bladder or dietary requirements! When Tiny was swapping her multi vitamin a while ago, she actually thought how nice it would be if Desert Harvest made one, but she never asked about it. It looks like lots of other people must have had the same idea and we bet it’s going to sell like hot cakes as soon as it’s launched! We hope Team DH will bake enough for us, because we think lots of our customers are going to be really keen to try this!
What would you do differently if you could see the inside of your bladder or bowels? How would it alter your attitude to their healing process? I frequently hear from IC sufferers who are experiencing only limited relief from symptoms with Desert Harvest Aloe Vera Capsules, Waterfall D-Mannose, or other herbal and nutritional supplements. They are usually aware that what they eat and drink can impact on their wellbeing, but all too often they tell me they ‘mostly follow the IC diet’ (which I don’t recommend – see this blog post), or ‘try to avoid gluten’, but on closer questioning what they mean is they still eat/drink things that they know exacerbate their symptoms at least a couple of times a week, even though for some days of the week they comply with what they believe to be appropriate protocols.
“Will D-Mannose help with my interstitial cystitis?” is one of the questions I am most frequently asked by customers, closely followed by, “Can I take D-Mannose and the aloe vera capsules together?” I have therefore decided to write a blog post to address these in detail.
Regarding the latter, the answer is a simple yes. Yes, you can take D-Mannose and Desert Harvest’s Super Strength Aloe Vera Capsules together. And yes, you can take each or both of these alongside any other medication you might be using as well. Regarding the former, the answer is less straightforward, but if I had to sum it up in one word I’d go with ‘probably’.