Hello and welcome to the Tiny Pioneer PGAD Survey! Please read through the following information before answering any of the questions below.
Persistent Genital Arousal Disorder (PGAD) is a condition that is as yet poorly understood. It currently has no single known cause and no single known cure. Only a very small amount of research has been carried out into the disorder and this has not been particularly illuminating.
The aim of this survey is to look for trends among PGAD sufferers in the hope of more accurately pinning down triggers and alleviating factors. It will also seek to identify risk factors and comorbid conditions.
The survey is open to men, women and children of any age who suffer or have suffered with PGAD. It is not currently open to transgender persons, as the complex genital reconstructive surgery that they undergo is beyond the scope of this study.
The survey is open to those who have been officially diagnosed with PGAD and those who have self-diagnosed with PGAD. There are certain screening questions and criteria within the questionnaire. Participants who fail to meet the criteria deemed necessary for PGAD to be present will not be included in the final results.
No part of this questionnaire is intended as a diagnostic tool or treatment guide. No inferences should be drawn from any of the questions. This questionnaire has not been written by medical professionals and is not intended to diagnose, treat or advise. You should never embark on any kind of treatment protocol without consulting a qualified healthcare professional.
This questionnaire, in whole and in part, is the intellectual property of Tiny Pioneer. It may not be replicated without consent. In particular, it may not be copied for the purposes of carrying out other research into PGAD without written permission.
The data created by responses to this questionnaire will also be the intellectual property of Tiny Pioneer. Tiny Pioneer may publish findings it deems appropriate on its own website. Should these be used to develop further research into PGAD or to develop treatment protocols for PGAD, permission must be sought and credit must be given. The findings may not be copied without written permission. Legal action will be taken against any persons or organisations that copy this questionnaire or its findings and attempt to pass it off as their own work.
The questionnaire will remain open until a statistically sufficient number of responses have been obtained. Completed questionnaires will be held by Tiny Pioneer for an indefinite period of time. Copies of completed questionnaires may also be supplied to relevant third parties at the sole discretion of Tiny Pioneer. No individually identifying information will be collected – in other words, no information that you supply will be traceable to you. We will not ask for names, addresses, date of births, contact details, or other data by which you could be identified. In this way, you can be sure that your responses will remain anonymous.
By completing this questionnaire, you agree to the use of your responses in the manner outlined. If you do not agree to the use of your responses in the manner outlined, please do not take part in the questionnaire.
This is a detailed questionnaire and will take about twenty minutes to complete. The responses you give could eventually be important in shaping healthcare professionals’ understanding and treatment of PGAD, so please do not begin until you can give it the concentration it deserves. Please answer all the questions as accurately as you can. Sometimes there may not be an answer that exactly fits – in these cases, try to pick the best match. There is an optional section at the end where you can choose to write any additional information you feel relevant.
If you do not suffer from PGAD, please do not submit any responses to this questionnaire. Although the disorder may sound amusing or exotic, those who suffer with PGAD often find it extremely intrusive, physically uncomfortable, and mentally distressing. Any ‘joke’ responses could skew the overall data and have a detrimental effect on the usefulness of the survey. By all means read through the questions for information/entertainment purposes, but please only submit responses if you feel you are now or have in the past been affected by PGAD.
Thank you very much for your help!